For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Growing up as someone with cystic fibrosis, I obviously had some health issues, but I was able to play sports and do many things young boys like to do. I still enjoy playing sports and being active as ...

My journey with cystic fibrosis has been difficult, to say the least. CF was first brought into the conversation when I was 16 years old at Children's Memorial Hospital here in Chicago. I underwent ...

I’m going to preface this article by saying I’m probably not the best person in the world to give anyone relationship advice. However, I do feel like a lot of other people out there — whether you have ...

Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...

When your back is against the wall and there is nothing you can do except to hope and pray for a miracle, you enter a psychedelic state of mind. You become at peace with the inevitable. You begin to ...

When we think of the word family, we feel that warm and fuzzy feeling inside. We ordinarily think of our parents, maybe our siblings, grandparents, aunts ... but is that the entirety of our family?

The South Carolina Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

The Central Texas Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

The Cystic Fibrosis Foundation is deeply committed to ensuring that all people with CF can access the high-quality, specialized care they need to lead long, healthy lives. For many people with CF, ...

A nurse coordinator for nine years, Sue serves as the nurse coordinator and program coordinator at the adult cystic fibrosis center at Oregon Health & Science University (OHSU). She has served on the ...

Dear Majority Leader Thune and Minority Leader Schumer, The members of the Modern Medicaid Alliance (MMA) and its supporters write to you today to express deep concerns and opposition to many of the ...